I can't believe the time has come.
For those who don't know what I am talking about..........our oldest son, Nathan, was born with a condition called Microtia/Atresia. It is a genetic disorder, where he was born without his right ear or the ability to have full hearing out of that ear. Today we started the journey for repairing his ear in the future.
Four years ago God blessed Rod and I with this amazing little boy. He has the kindest, most caring, loving spirit for a 4 year old, that I have ever known. Today was a big step for us on the road to making sure he has the self-esteem and confidence he needs to keep hold of that huge heart he already has.
I know there are so many other conditions or disorders he could have been born with, and we thank God everyday for this "cosmetic" bump in the road. But when it is your baby, and knowing what he is going to have to go through and endure over the next year or so, it doesn't make it easy.
Today we traveled to Atlanta to meet with a surgeon by the name of Mark Jones. He is a plastic surgeon that specializes in ear reconstruction. What a blessing he is going to be to our family. For the first time since Nathan was born, I feel like I know where we are going with this and where we are going to end up. Dr. Jones answered so many questions that we never truly knew the answers to. What an amazing thing we have in the world of medicine, to take rib cartilage from your little boy and mold it into an ear that will look and feel just like the real thing. Praise God for giving these doctors the knowledge to pioneer a procedure like this.
We learned that hopefully by next May (Nate has to be at least 40 lbs) we will be starting the 1st surgery. Within 8-9 months he should be done with the final surgery, there are 4 total.
I won't bore you with all the details, but if you are interested in seeing a little boy going through the same thing Nate will be doing (by the same Dr.), please click on the blog link for Nicholas Weiss under my Microtia Friends subtitle. You can also go to www.atlantaplastics.com to see Dr. Jones's website.
Sidenote: We will be going to UAB in August (my mom, aunt, cousins, Nathan and myself) to meet with the genetics team. There is a possibility that Nate was born with a syndrome called Goldenhar Syndrome, which would explain the microtia to some degree. Pray for us! Depending on the severity, if he has it, it would require more surgeries (on the jaw) on top of what he already has to go through.
Now for the fun!!! We made our way to the Georgia Aquarium after our doctor visit. Nathan absolutely loved it. Enjoy the pics below. And thanks again for your thoughts and prayers today and in the future.
Thursday, July 3, 2008
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9 comments:
We can't believe it's already here!!! Like we told you last night, it feels like YESTERDAY when we were in the delivery room with yall learning about Nate's little ear. It's hard to believe it's been almost 5 years! We have and will continue to pray every single step of the way!!!!
I am so glad everything went well yesterday. Joe told me he talked with Rod so I didn't bother to call...figured yal were exhausted from everything. I know all will be fine...put it in God's hands and try not to worry. Love yal!
We will certainly be praying! Keep us posted!
Oh Molly! I am so happy for what the future holds for you guys! Nate is such a precious child! We will continue to pray for your family :)
Thanks for sharing this part of your lives with us.Our prayers will be ongoing. What wonderful parents you are to the sweetheart of all 4 year olds that I know! We miss seeing yall around in the neighborhood!
The LOLLIpop Lady
Molly,
Thanks for the tears this morning! I can't believe Nathan and Jansen are about to begin this journey in their life. It feels like yesterday I talked to you about Jansen's little ear. I am so thankful that we came in contact with ya'll and our thoughts and prayers are with each of you. We know this is a HARD decision to make. Please let me know when you come back to Atlanta. We would love to meet you for dinner.
We are so glad his appointment went well and our prayers will continue for your family through this process. Keep us posted on next step's.
Keep us posted. We will be praying for that little Nate and you all as well.
I'm so glad that the doctor's visit went well! Nate is such a cutie pie. I want to hear all of the details!
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