Nathan Update!

Thanks to everyone who has called or sent emails. I couldn't call everyone back so I figured I would just post yesterdays events on here. This will hopefully cover everybody who is interested. :)
The trip to UAB yesterday was very informative. We met with a geneticist by the name of Dr. Lose. He was a very nice guy and spent some good quality time with all of us. My mom, aunt, Rod, myself and Nathan filled up that examining room pretty good. He did a facial exam on Nate, then moved to me and on to my aunt. (Reminder: She was born with Mictrotia/Atresia also) After examining us he believes that what Nate probably has is a syndrome called Treacher Collin's. This syndrome is caused by changes in the gene on chromosome 5 which affects facial development. 1 in 10,000 babies are born with it, and there is a 50% chance of passing it down to future generations. If this is what he has, as he grows it should NOT get any worse.
They are presenting Nathan's case and pictures on Tuesday to a genetics conference and we may be contacted by their Cranio-Facial expert. We will not be doing any kind of invasive testing at this time. Just exams and talking about our future plans.
The concern in the future is that with this kind of syndrome you have to worry about the future children in our family ( more kids, grandkids, great grandkids, etc). As the gene continues to pass down to generations the characteristics and defects become more severe. This is something that Nate, Wilson, possibly Stirling and all the other kids we are blessed with will have to know about when they start thinking about having kids.
I know this is alot, and I could go on with more info but I won't bore you. Thanks again for your thoughts and prayers. We are so blessed to have such caring friends. God is good!!