Please say a prayer for..........

Some of you might remember last month when I posted about our consultation with Dr. Jones in ATL. At the end of the post I mentioned we were going to be going to UAB for an appt. with the genetics team. Well that day has finally arrived. We will be leaving in the morning, bright and early. As I mentioned before, my sweet boy Nathan was born with Microtia/Atresia. Almost 5 years ago when he was born, the doctors here had never really seen a case like his. (as I have done my research, there are alot more cases out there, just not in Auburn) Just recently I have had a Dr. friend inform me that he thinks Nate was born with a syndrome, called Goldenhar Syndrome. Again the doctors here don't know alot about this either. This is what has led us to UAB. We are hoping nothing comes of it and if he does have this syndrome it is a very mild case. After we meet with the genetics team there is a chance we would then be seeing a Cranio-facial specialist. With Goldenhar, you have to worry about the jaw growth. (Nathan already has a crooked smile, cute but definitely crooked) We need your prayers!!!!! Worse case scenerio would be that he would have to have additional surgeries on top of the ones he will have on his ear. These surgeries would be on his jaw, to lengthen the right side.


I know God has a plan for him and us, but I would really appreciate your prayers. God is so good and I know through him everything will be fine in the end, its just getting there. I have to remind myself everyday that God made Nathan the way he is for a reason. Trusting Him to see us through all of this is what we have to do. But as parents, and most of you are, it is hard to not ask "Why?" I have a verse in my bible marked for Nathan and I find myself in situations such as these having to go back and reread it---- Pslm 139: 13-14 "For you created my inmost being; you knit me together in my mother's womb, I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well." I mark this verse with a poem that someone sent me a couple years ago. I have shared it with some of my friends but I wanted to post it for those of you who may know or meet a family with the same situation. I know I have kind of rambled in this post, but sometimes it can be quite theraputic to talk about this stuff.

Your Special

On the way from Heaven, God delayed my trip that day. He said that I was special, And then sent me on my way. But not before He kissed me, Right upon my ear. He left His blessed mark to carry with me here. He whispered in my ear right then, that He loved me without a doubt, And then He closed my ear up tight, so the whisper wouldn't get out. He told me both my legs were strong, and would help me stand up tall. He told me both my arms would work, to catch me if I fall. My eyes would catch the memories to store within the pages of my mind. My heart would fill with all of the things I love, so many things I would find. He told me I could fall asleep to my daddy's bedtime tales, And listen while my mommy sings of seas and boats and sails. One ear, He said, could hear the sounds that little birdies make. The other ear was his gift to me, a blessing for my sake. For when I'm feeling sad, He said, my other ear would hear, His whispered words of eternal love, left waiting for me there.